835 am March 17, 2020
St. Patrick’s Day
Chemo day 1
The waiting for appointments in between in torture. I want to get going and get through this day.
Never imagined myself sitting in a cancer center but better me than Mike or the kids.
They provide and accommodate well here. Even puzzles to do while waiting. The sun is shining through the window. Bright and happy.
My daughters have sent a card with me just for today.
I am saving the card for when I settle into chemo in a bit.
They outpouring of messages of positive thoughts and prayers has been wonderfully overwhelming. Some of my cousins, some of who are dealing with cancer themselves, are fasting and praying for me.
Same day… 845 am
I brought some items to keep e occupied during chemo. They are in a beautiful bag decorated by my youngest daughter.
There was a man in here who snorted when he laughed. I am glad he could laugh during a stressful time. A woman in here actually has an old-style flip phone like Gibbs uses on NCIS.
I can see forested mountains out the window. We are minutes from Lake Coeur d’Alene. I am in love with this beautiful place. I am not ready to leave (die). I have so much to see and do with my family, and especially the love of my life!
The day started with an arm draw for labs and waiting an hour for the results to come back to my oncologist Dr. Kim. Let me tell you about Dr. Kevin Kim. Very nice, intelligent and informed doctor who is very up front and not much for jokes and but I am thankful for him. He showed us my PET scan. I was glowing with cancer in quite a few places but he said I am stilly highly curable. He pointed out that the cancer is in my neck, chest, abdomen, spleen, liver and colon. Possibly my bones. I stated that I had a clean colonoscopy a year ago but he said I didn’t have the cancer then. It would have been just months since it started growing. I can remember when I thought I was doing so well with my diabetes and then it got to where I kept getting sick from sugar. It got worse through the holidays so I guess that is when it must have started.
After our consult with Dr. Kim we went upstairs where I was asked to lay on my stomach so he could do a bone marrow biopsy. They allowed Mike to stay in the room for the procedure. He did give me a little lidocaine for the procedure but since I was tolerating it so well, he didn’t add anymore. I could certainly feel when he was hand-drilling into my bone for the sample and Mike does a good impression of Dr. Kim’s struggle to drill in. I “tolerated the procedure” as they say in medical records.
Next, I got what they call a “chemo teach” where the nurse, Hannah, went over a binder full of information and what to expect as I go through treatment. I thought my head was going to explode.
I then got my port accessed for the first time and even though I didn’t have a chance to put the numbing cream over it, it didn’t hurt to bad. No more than when they do an a/c fossa IV. They started with some pre-chemo meds to help with tolerating the actual chemo (poisons) drugs. After that, they started the chemo. Some had to be administered in a special timely manner. One of them they had me chew on ice chips to help keep my mouth vessels shrunken while they administered it in order to help prevent mouth sores that particular drug has been known to cause. I also have already purchased some mouth rinses that will help with any mouth sores. One of the pre meds they gave me was Benadryl and it made me tired. I ended up sleeping through the last hour. Then I slept on the way home and went to bed for a few more hours when I got home. I was able to eat dinner when I got up, which was a good start. Dinner was provided by my church family, who have been awesome in providing some meals to help us out. I crocheted while watching tv with the family. I stayed up a little while but still was able to sleep even more! I slept with my music on and that helped. I also have a humidifier/diffuser that I use peppermint and lavender in while I sleep.